Purpose

Recently I was approached by a friend of mine, who asked me if I would be willing to co write a book about healthcare and about how to deal with distracted doctors, emotional well being when diagnosed with a serious illness. It will be about how to deal with family and friends, when learning to live this new life you have been given, but not asked for. These are only a few of the topics we will touch upon. We have two different diagnoses, but yet so many similar experiences with the health care system. I am not sure I will go as far as to say that the health care system is completely broken, it is not, but there is definitely room for improvement both by the doctors, but also by us, the patients. We are hoping to develop a handbook with guidelines for people to use, when finding themselves in a situation where they will not only need to learn to "manage" their doctors, but it will also have a large emphasis on self advocacy. Unfortunately, self advocacy can be the only way to get ahead when dealing with a tough diagnosis, and a lot of people either don't have the resources or the knowledge to stand up for what they are entitled to, and these people, may end up living less than fulfilling lives. Imagine not only are you dealing with a devastating life altering disease or condition, you have no idea where to go for help and guidance. You don't know that you are not alone. Our hope is that this book will help these people navigate the jungle called health care, and even if their lives are far from the ideals they once dreamed about, being your own advocate can help you seek the help and guidance needed to recreate and alter your dreams into a more realistic and fulfilling life.

There are plenty of resources out there to help people with different forms of disabilities, lead satisfying and productive lives, you just need to know where to look.

Please keep following this blog, but also, check out the blog on Rockethub, funding is an issue so if you, or someone you know have a few dollars to spare, please consider supporting our project "Cut off My Arm so You can see Me", someday you might be the one feeling lost, alone, and scared...Check out the Rockethub site at http://www.rockethub.com/projects/4108-cut-off-my-arm-so-you-can-see-me/posts

Peace XO
P

Contact email keepinghopejourney@gmail.com

Cut off My Arm so You Can See Me

Please check out my new project. I hate asking for money, but any small amount will be greatly appreciated. The book is very important to me, but even more to my friend. I will write more later. In the mean time, check out the link.

Peace

P